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题目:: Lessons learned in developing a culturally adapted intervention for African-American families coping with parental cancer.
作者:: Davey(Maureen P),Kissil(Karni),Lynch(Laura),Harmon(La-Rhonda),Hodgson(Nancy)
状态:: 发布时间2012-12-11 , 更新时间 2012-12-11
期刊:: J Cancer Educ
摘要:: Prior clinical research supports the effectiveness of cancer support groups for cancer patients and their families, yet African-American families continue to be underrepresented in cancer support groups and in cancer clinical research studies. In order to fill this gap, we developed and evaluated a culturally adapted family support group for African-American families coping with parental cancer. We encountered unexpected challenges in overcoming barriers to recruitment, partnering with oncology providers, and building trust with the African-American community and African-American families coping with parental cancer. We describe actions taken during the two phases of this study and lessons learned along the way about recruiting and engaging African-American families in cancer support group studies, partnering with oncology providers, networking with the African-American community, and the importance of demonstrating cultural sensitivity to overcome the understandable historical legacy of mistrust.
语言:: eng
DOI:: 10.1007/s13187-012-0398-0

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